Its amazing that we have one special day a year to celebrate a specific group in our society that otherwise goes unnoticed the other 364 days. Now I'm not complaining.... I'm happy we have this wonderful day. My issue is how is it celebrated and by whom?? I know how vital funding is to help our loved ones with DS for there are numerous health and education issues that desperately need help. I also know we need more awareness in our communities. But...my thoughts today on this national DS day is personal. When I had my child 11 yes ago with DS, my whole world turned upside down and inside out. Now mind you, I had years experience in working with persons with DS as a counselor/teacher/job developer/nurse and case manager, but none of that prepared me for being a PARENT of a person with DS. My education and experience was a blessing in terms of care and therapies etc....but nothing prepared me for the emotional upheavals and the constant MommaBear persona that emerged. I would be lying if I didn't admit the grieving process wherein I realized my angel won't be attending law school or medical school and most likely won't be our first female president. I grieved...and then I stopped grieving! When I saw how hard it was for her to accomplish the simple take for granted things my other children accomplished, I applauded and appreciated her all the more. Walking, talking, riding a bike, learning numbers and letters was a climb up Mt.Everest for her, and she's still climbing. That's my point...she's still trying, doesn't give up for long and every tiny baby step is a huge milestone for a child with challenges. I wonder if my other "typically developed" children would have had this type of determination and courage and tenacity to forge ahead as she does? I wonder! So today...I stand and applaud all the children and adults with Down Syndrome for all their strength and courage. I applaud the parents and teachers who are cheering them on and who are fast to pick them up when they falter and who never give up on them..Never! Today is your day, my angel and I only wish the rest of the so called "abled" world could have just an ounce of what you are made of! Hurray for you!
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