Fundraisers Scheduled for Family of Christopher James Gray

On Dec 28, 2016, Christopher's family received the devastating news that their only child has been diagnosed with Adrenoleukodystrophy, ALD, a rare and fatal genetic brain disease that affects only 1 in 18,000 people. This disease distroys the protective sheath that surrounds the brain's nerve cells that allow us to think and control our muscles. Like other boys with this stage of ALD, Christopher will rapidly start to regress with worsening symptoms including, seizures, loss of muscle control, and progressive dementia.

Christopher now has hearing and vision loss and has shown difficulty with balance. There have been an abundance of expenses involved in diagnosing this disease, treatment, loss of work and the ongoing trips to Mass General. Christopher will continue to need treatment that will include medication, wheelchairs, ramps, etc. There is no cure at this stage and there is no way of knowing how fast this disease will progress.

Your donation and support will allow this family to focus on the time they have left together and provide love and support to their son. Please join us for this fundraiser/benefit and show this family that they are not alone.

Sunday, April 2 at 12 PM - 4 PM at Chute Gates 372 Main St, Terryville, Connecticut 06786. It will be $20 a ticket sold in advance or at the door. Mikki 860-978-8926

Another fundraiser is also scheduled. A pasta dinner with a raffle, sponsored by Watertown's John Trumbull Primary School PRO and Curtain Call Kids, will benefit the Gray family to help pay for travel and medical expenses for their son. Tickets are $50 per family, $20 for adults, $5 for children under 12 and free for children younger than 5. The dinner will be on April 27 from 4 to 8pm at the school. For tickets, contact Becky at beccavnene@yahoo.com or 203 528-1901.

Please go to GOFUNDME.COM and search Christopher James Gray if you would like to donate.