Care For Those Facing Alzheimer's

Caregiving for a loved one with Alzheimer’s can be an emotionally, physically, and financially draining role. When my grandfather was diagnosed with Alzheimer’s disease – I did not realize how devastating the effects of this health crisis truly are. As my grandfather’s health and ability to function rapidly declined - I watched as our family had to grapple with the changes and the overwhelming effects of this heartbreaking disease.

As a caregiver my everyday life became busier and yet more isolating – I had trouble grasping the diagnosis and often felt powerless during my grandfather’s dire times of need. Like many others who have loved ones facing this disease, I did not know where to turn and I was unprepared for the next steps and stark outcomes.

Following these experiences, I have joined forces with the Alzheimer’s Association to encourage passage of the Palliative Care and Hospice Education and Training Act or PCHETA (HR 1676). When enacted, this bill would help establish an adequate, well-trained palliative care workforce through training, education, awareness, and enhanced research. Palliative and hospice care are specific medical approaches that focus on increasing support for patients and their caregivers.

Congressman Lipinski has been a supporter of Alzheimer’s disease priorities in the past and I thank him for cosponsoring this bill which will help open communication between patients, caregivers, doctors, and staff and help ensure that quality care is available for those who are suffering.

Sincerely,

Samantha Rapp