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Neighbor News

Desperate Need to Find a Cure for VWM

Let's stop this disease together. With your support, no parent in the future will be told that their child's life will be destroyed.

Dear Valued Reader:

Can you please make this video go viral - https://www.youtube.com/watch?v=tuh899edPOQ ?

Note: #SavingChloeSaxby campaign is a worldwide campaign to find a cure for Vanishing White Matter Disease (VWM). In 2009, my niece has been diagnosed with (VWM) - she's in this video along with 19 other kids.
Leukodystrophy known as Vanishing White Matter Disease (VWM) is a degeneration of the brain. Currently there is no cure for VWM. We are in race against time to Find a Cure for VWM ! Time is not on our side; most children born with this genetic disease die at an early age. Research efforts are greatly underfunded and there is little awareness. Please help us #findacureforvwm and Save a Child's Life ! To help us spread awareness see FB : https://www.facebook.com/findacureforvwm and to learn more about VWM see: www.savingchloesaxby.com

To donate to Prof. Orna Elroy-Stein VWM research
via check payable to AFTAU
39 Broadway, Suite 1510
New York, NY 10006
Attn: Joe Huber/Orna VWM research
or online: https://www.crowdrise.com/FindaCureforVWM

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In advance, thank you very much for taking your time to read this !
Warmest regards,
donna

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