Alzheimer's Disease is One Issue We Can All Agree On

Caregiving for a loved one with Alzheimer’s can be an emotionally, physically, and financially draining role. When my mother was diagnosed with Alzheimer’s disease – I did not realize how devastating the effects of this health crisis truly are. As my mother’s health and ability to function rapidly declined - I watched as our family had to grapple with the changes and the overwhelming effects of this heartbreaking disease.

As a caregiver my everyday life became busier and yet more isolating – I had trouble grasping the diagnosis and often felt powerless during my father’s dire times of need. Like many others who have loved ones facing this disease, I did not know where to turn and I was unprepared for the next steps and stark outcomes.

Following these experiences, I have joined forces with the Alzheimer’s Association to encourage passage of the Palliative Care and Hospice Education and Training Act or PCHETA (HR 1676, S693). When enacted, this bill would help establish an adequate, well-trained palliative care workforce through training, education, awareness, and enhanced research. Palliative and hospice care are specific medical approaches that focus on increasing support for patients and their caregivers. There is no tangible life expectancy with Alzheimer's and many individuals need long term care beyond hospice. By having additional trained doctors and other healthcare professionals who understand the need for and importance of palliative care, individuals living with the disease can have a better quality of life. Further, research shows that quality palliative care reduces hospitalizations which in turn saves tax payers money as many individuals with this disease rely on medicare and medicaid.

I want to thank Congresswoman Jan Schakowsky for cosponsoring this bill (HR1676) which will help open communication between patients, caregivers, doctors, and staff and help ensure that quality care is available for those who are suffering.

Senators Dick Durbin and Tammy Duckworth have both been a supporters of Alzheimer’s disease priorities in the past and I urge them to cosponsor this bill (S693).

The need for support by congress cannot be overstated. The US government is the 2nd largest funder of Alzheimer's disease research in the world. Without the investment in science and technology Alzheimer's disease is on track to bankrupt Medicare and Medicaid. The time to act is now. It may be too late for my mother or even me, but it is not too late for my grandchildren.

Sara B.

Skokie