Neurofibromatosis (NF) Network

Our mission is to find treatments and a cure for neurofibromatosis (NF) by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF. We are a non-profit 501(c)(3) organization that was founded in 1988 by a group of people who were in some way affected by neurofibromatosis. We are the leading national organization advocating for federal funding for NF research and building and supporting NF communities. The NF Network’s goal is to eradicate the health issues, pain, isolation and uncertainty that the diagnosis of NF inflicts. The NF Network provides opportunities for local NF organizations to share experiences. The network is a dynamic and growing open space for shared resources, development of new tools, and creation of innovative programs. It brings together groups from around the country to speak as one voice on national issues.