Back in January I brought to you a story about a young man fighting a rare immune disease. I thought I would let everyone know about Jackon's progress over the past 4 months. This disease is known to many as XLP. The only cure for this disease is a bone marrow transplant. Thanks to everyone's assistance by joining the bone marrow registry, a donor was found to help Jackson. On March 14th at Johns Hopkins hospital Jackson went under a Haplo transplant. A Halo transplant is known as a blood stem cell transplant. Jackson's dad was his donor.
Since March 14th it has not been easy on Baby Jackson. Jackson ended up in the PICU for 2 weeks and was on a ventilator. He was diagnosed with Veno Occlusive Disease (VOD) which is a possible complication of the transplant. He is being fed through a temporary feeding tube and will have surgery on May 8th for a more permanent feeding tube. Jackon is now on +51 post transplant and has been admitted at Johns Hopkins since February 19th.
Jackson might need to undergo one more transplant before everything is completely over. This donation is knwon as a donor lymphocyte boost. Donor lymphocyte boost is where lymphocytes from a bone marrow donor are infused in person who recieved the bone marrow transplant. The donation will also put him at an increased risk of graft vs host disease.
Find out what's happening in Odenton-Severnfor free with the latest updates from Patch.
Since being in the hospital Jackson was part of the big move to the new children's hospital on April 29th. The new children's hospital is known as the Charlotte R. Bloomberg Children's Center.
This coming up Saturday, there will be a fundraiser to Jackson. The fundraiser is knwon as "Suds for Bud Car Wash" and will be hosted at the 8th Avenue Flea Market in Glen Burnie (167 8th Avenue; Glen Burnie, MD). The fundraiser will be run from 8:00 to 2:00pm. Volunteers are still needed for the event. Anyone interested please call or text Barbara at 443-257-3629. Jackons also celebrated his 1st birthday while at John Hopkin's on April 27th.
Find out what's happening in Odenton-Severnfor free with the latest updates from Patch.
Let's all come out to the fundraiser and help Baby Jackson.
