Beverly Resident Dr. Justin T. Jordan Joins Board of Non-profit

Burlington, MA based non-profit Neurofibromatosis Northeast, whose mission is to find a cure and treatment for neurofibromatosis (NF), is extremely pleased to announce that Beverly resident Dr. Justin T. Jordan has recently been elected to serve as a member of their Board of Directors. Led by Board Chair, Lori Ryan, RN, MS, Neurofibromatosis Northeast has a highly professional 12-member board.

Executive Director Karen Peluso commented, “Dr. Jordan’s dedication to the well-being of the neurofibromatosis community as both a clinician and research advocate, make him a great addition to our board of directors. We are thrilled to have his expertise and passion in our fight to end NF.”

Dr. Jordan is an Assistant Professor of Neurology at Harvard Medical School and a neuro-oncologist in the Massachusetts General Hospital Family Center for Neurofibromatosis and Pappas Center for Neuro-Oncology, where he also serves as the Clinical Director. Dr. Jordan cares for patients with neurofibromatosis and allied disorders, as well as those with primary and metastatic brain tumors. He has a particular interest in the investigation of novel molecular testing and on novel therapies and has served as the site principal investigator on several such clinical trials. He is involved nationally in developing and refining treatment guidelines to optimize quality of NF care, and sits on the Clinical Care Advisory Board of the Children’s Tumor Foundation. Dr. Jordan is an active advocate for funding and support for patients and research, and visits Beacon Hill and Capitol Hill routinely.

Dr. Jordan says, "Neurofibromatosis Northeast is an important organization that promotes research and advocacy for those affected by NF and associated disorders. I'm honored to be elected to the Board of Directors and contribute to their mission to improve care for patients and their families.”

Neurofibromatosis is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere on or in the body at any time. While the vast majority of NF-related tumors may initially start out benign, the disorder can be debilitating and may cause disfigurement, blindness, deafness, psychological issues and cancer.

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About Neurofibromatosis Northeast:

Neurofibromatosis Northeast is based in Burlington, MA. Their mission is to find a cure and treatment for neurofibromatosis by promoting scientific research, creating awareness, and providing hope and support to those who are affected by NF. To learn more about neurofibromatosis, visit the Neurofibromatosis Northeast website at www.nfnortheast.org or call 781-272-9936.