We are CTC 5K- Run for Research

Connective Tissue Coalition-We Are CTC 5K Run for Research-April 25, 2026--a message from our Founder Jon Rodis & Race Director Lynnette Stebbins We invite you to be part of something truly meaningful—a 5K event dedicated to raising funds and awareness for research on connective tissue disorders, such as Ehlers-Danlos Syndrome, Loeys-Dietz Syndrome, Marfan's Syndrome and their many comorbidities. This event is especially significant because we will be joined by four highly respected and accomplished doctors in the field, whose work is helping advance understanding and treatment of these often-overlooked conditions. Their presence underscores the importance of this cause and the real impact we can make together. We would like to thank Dr. Petra Klinge, Dr. Pradeep Chopra, Dr. Paldeep Atwall and Dr. Sara Strecker. Also, joining us is the accomplished author of the book 'Disjointed’ Diana Jovin, Co-Producer of the documentary Complicated Donna Sullivan, Chiropractor Brendan McCann and The Connective Tissue Coalition board President Jon Rodis. On April 24 (the night before the 5K) we will have a ‘Meet and Greet’ from 7pm to 9pm at the Ashworth by the Sea Hotel in Hampton Beach where everyone will have an opportunity to meet the CTC doctors and CTC board members and get to know one another. Whether you choose to run, walk, donate, or simply show your support, your involvement will directly contribute to critical research efforts and help improve the lives of those affected. Event Details: What: We Are CTC 5k-Run for Research When: 4/25/26 @10AMWhere: Hampton Beach, NH How to Register/Donate: https://runsignup.com/Race/NH/Hampton/WeAreCTC5KThis is more than just a race—it’s a chance to come together as a community, raise awareness, and support groundbreaking research. We would love to see you there and truly appreciate any support you can offer. Please feel free to share this invitation with friends, family, and colleagues. Thank you for helping us make a difference. Warm regards, Lynnette and Jon Lynnette Vaillancourt We are CTC 5K Race Director NH EDS Support Group Leader Rare Disease AdvocateLynnette@connectivetissuecoalition.orgJonathan Rodis, MBA President and CEO-Connective Tissue Coalition National Disability and Medical Advocate for Rare Disorders