Charcot-Marie-Tooth Disorder is a neuromuscular disease effecting the peripheral nervous system. In fact, is it the most commonly inherited peripheral neuropathy, effecting 1 in 2,500 people from all walks of life. In addition to being inherited, it can be found in individuals with no family history, known as a spontaneous mutation. Individuals can be diagnosed at most any age, and our members range from small children to senior citizens,
The Support and Action Group of Central New Jersey meets roughly bi-monthly at CentraState. We inform, share, and support each other in this journey. This meeting, our guest speaker will be Jeana Sweeney, Director of Community Services for the Charcot-Marie-Tooth Association. Jeana will share her own fundraising experiences, ideas, the children's cookbook she wrote to benefit the CMTA, and most of all, we will discuss together our CMT AWARENESS NIGHT at the SOMERSET PATRIOTS on July 19th! Tickets available for $10 and t-shirts are available for $10.
Contact MARK WILLIS at mrwillis@optonline.net for more information.
