- A day to pay tribute to the children and families affected by pediatric cardiomyopathy
- Annual event raising funds to support pediatric cardiomyopathy research and treatments
- Raised more than $405,000 in 2010
ABOUT CHILDREN’S CARDIOMYOPATHY FOUNDATION:
The Children’s Cardiomyopathy Foundation (CCF) is a national non-profit organization dedicated to finding causes and cures for pediatric cardiomyopathy. Cardiomyopathy is the leading cause for sudden deaths and heart transplants in children under age 18. CCF started in 2002 with one family’s determination to call attention to this poorly understood heart disease and to take action on the lack of medical progress and public awareness. Since then, CCF has grown into a global community of families, physicians and scientists focused on improving diagnosis, treatment and quality of life for children affected by cardiomyopathy. CCF is involved in all aspects of the disease from research and education to patient support, awareness and advocacy. The Foundation has made great strides in bringing together experts from the medical and scientific fields to advance knowledge on pediatric cardiomyopathy and in developing support services for those affected by this chronic disease. More than $1.6 million has been committed to research and treatment initiatives in the U.S. and Canada, and CCF has led the way in establishing a biologic specimen repository and in planning two international scientific workshops. CCF’s educational materials are now distributed to more than 70 hospitals in North America. The Foundation’s hope for the future is that more lives will be saved, and every affected child will have a chance to live a full and active life.
