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Neighbor News

2nd Annual Bowl for Ella

WE Need your Help Gift cards & baskets Donations Please help us help Ella Call or Email Lisa (631)806-2249 BOWL4ELLA@GMAIL.COM

Come down to the

Deer Park Bowl

849 Long Island Ave

Find out what's happening in Deer Park-North Babylonfor free with the latest updates from Patch.

Deer Park, NY 11729

Oct 17, 2014 @ 8:30PM

Find out what's happening in Deer Park-North Babylonfor free with the latest updates from Patch.

Presale Tickets $30

Please call oe Email

Lisa (631) 806-2249

BOWL4ELLA@GMAIL.COM

At the Door $35

Kids 2-12yrs Half Price

For some Bowling, Raffles, Pizza &

Best of all come meet Ella

Ella was born on May 20, 2012. We were expecting a beautiful, healthy baby. While she was beautiful, sadly Ella couldn’t eat, breathe or move on her own. She underwent a battery of tests and was seen by every single pediatric specialist in the hospital. Finally at 4 weeks old, we got Ella’s diagnosis.

She had Prader-Willi Syndrome (PWS).

PWS is a complex and rare genetic disorder occurring in about one out of every 15,000 births, affecting all races and genders with equal frequency. PWS is caused by the abnormal inactivation of a portion of chromosome 15. The symptoms of PWS are varied and dramatic. The most notable symptom is an insatiable hunger. Most people with PWS are not able to control their food intake, and have to be under constant supervision. The endless hunger, coupled with a metabolism requiring only about half of a typical peer, can lead to excessive eating, diabetes, morbid obesity, and even death.


Please make a Donation today at WWW.RUN4ELLA.COM/PFEIFFERFAMILY

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