Accessing Independence - HHSH, Neighbor

What does Help Henry See and Hear do?

We help YOU access your independence.

We are about supporting those in our community who have Usher Syndrome, are low-vision or blind or are deaf or hard-of-hearing. We want to further research into vision-related disorders such as Usher Syndrome, Retinitis Pigmentosa and other diseases of the eye. We want kids with sensory-impairments to have the same opportunites to have fun and be a kid as their typical peers. We want to educate schools, educators, friends, families, and parents about living with a sensory impairment.

Here is what Help Henry See and Hear does to that end:

There is a scholarship at Utah State University in the amount of $2,500 that is funded by Help Henry See and Hear to train nationally credentialed interveners for deafblind children across the county. Utah State University is currently the only Nationally Credentialed program in the country for Interveners. However, there are other programs across the country going through the credentialing process.

We send deafblind, deaf, and blind or low-vision kids to summer camp. This past year we sent 3 kids to camp at the Woodford Cedar Run Wildlife Refuge. In addition to paying their tuition we also provided each child with a support person so they had full access to the camp, the counselors and the other campers.

For the Summer of 2015, we will be sending kids to camp through our new scholarship program. Chidren with sensory-impairments will be able to go to camp in an inclusive environment with a support person.

We sponsor the Reek for a Week for Usher Syndrome campaign. The Campaign is centered around high school sports teams who wear the Reek Week shirt for 5 days to raise awareness of Usher Syndrome. We just completed our inaugural campaign with Camden Catholic High School in Cherry Hill, NJ. We are reaching out to other schools in the area to continue the campaign next year.

We support the Usher Syndrome Coalition. The Coalition houses the International Registry of individuals with Usher Syndrome to advance research into a cure for Usher Syndrome. Research into Usher Syndrome has been slow. This is due to the lack of access to people with Usher Syndrome by researchers.

Now that you know what we do. Here is how we do it:

We are working dilligently as a board to come up with exciting opportunities to raise awareness and money to succeed at our mission. Here are some of our current events and upcoming events:

And we are hosting our 3rd annual Usher Syndrome Awarenss Family Fun Day at the Flying W Airport in Medford, NJ on Sunday, July 19 from 11 to 5. There we will have loads of family fun such as games, helicopter rides, bounce houses, live music, deafblind demonstrations and so much more.

On Friday, October 30th we are again hosting a designer bag Bingo and basket raffle. Tickets will be going on sale soon!

And lastly, we rely on your generous support to keep us doing what we do. If you would consider a tax-deductible donation to Accessing Independence – Help Henry See and Hear you will be part of making the world aware and making a difference in the life of children with Usher Syndrome.