Rare Disease Or Rarely Diagnosed?

Please apply your best excuse for these symptoms:
1) Your cholesterol is way too high.   I've been eating too much meat and not exercising enough.  My family genetics are kicking in.
2) Restless leg syndrome.  Gotta cut back on caffeine and sugar after dinner.
3) Slightly anemic.  Bad diet, gotta eat more greens and meat to raise iron in my body.
4) Heart rate is too high.  Not exercising enough.  Gotta get back in shape.
5) Very tired after lunch.  Eating unhealthy lunch. Coffee buzz just wore off.  Change diet.
6) Short of breath.  Possible new allergy or asthma.  Get tested for both.
7) Slightly enlarged tongue.  You don't really notice the increase.

These are all common health related symptoms. You now rationalized many of the symptoms of a highly fatal Disease. 
The big question.  Is this a rare disease or is the disease rarely diagnosed?  As I am finding out, rarely diagnosed.

Amyloidosis, if not diagnosed early, is a fatal blood disorder.  I have amyloidosis.  I was diagnosed.  Wish I was diagnosed earlier.  Had it not been for a throw away comment from a Doctor who had read about this disease in school,  I would be pushing up daiseys.

This article is to raise awareness of Amyloidisis in Athens.  Trust me in saying that if someone in Athens has Amyloidosis they will not be diagnosed early and usually it is too late. 

Amyloidosis is a relatively rare blood disease that develops when protein called amyloid builds up in your organs or body tissues in areas such as your heart, liver, kidneys, spleen, digestive (gastrointestinal) tract and nervous system. This buildup can affect your organs so they don't work properly.

The exact cause of primary amyloidosis is unknown, but doctors do know that the disease begins in your bone marrow. In addition to producing red and white blood cells and platelets, your bone marrow makes antibodies — proteins that protect you against infection and disease. After antibodies serve their function, your body breaks them down and recycles them. Amyloidosis occurs when cells in the bone marrow produce antibodies that can't be broken down. These antibodies then build up in your bloodstream. Ultimately, they leave your bloodstream and can deposit in your tissues as amyloid, interfering with normal function.
 
When your body gives you symptoms there is usually an underlying problem.  Don't rationalize them away.  Go see a physician.  Get your blood tested. Keep chasing what your body is telling you.

After countless amounts of testing,  it was recommended that I do one more test then forget about it.  The test was negative.  My wife would not relent.  My time would have been up in November.

I opened LabTest Select on Milledge for folks that need blood testing.  Sometimes your doctor is not allowed to order tests if you are not at "risk" by insurance standards.  Maybe you don't have health insurance. There is an option. You may have your blood tested at LabTest Select. 

Tom Senyitko patient LabTest Select and LabTestSelect.com