Share to be aware: FSH Society's #CureFSHD Campaign

The FSH Society, a local non-profit that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy (FSHD), launched their #CureFSHD campaign to build awareness and educate people about FSHD.

The FSH Society created 21 impactful images of people with FSHD in combination with little-known facts, warning signs and impacts of FSHD across the photos. The FSH Society features one of the images each day and asks people to consider sharing the #CureFSHD images over their personal social media pages in order to teach the public about the disease.

Affecting an estimated 870,000 people worldwide, FSHD is one of the most common muscle dystrophies. The genetic disorder presents a lifelong progressive loss of skeletal muscles, typically attacking the muscles of the face (facio), shoulder blades (scapula) and arms (humerus), though it can progress to affect any skeletal muscle. Approximately one-quarter to one-third of patients end up in wheelchairs.

“These images show the pain and struggle we fight through on a daily basis,” said Carlos Romero, a national champion paraclimber with FSHD from Seattle, WA. “It is such a simple task to share these images over social media; however, the impact it will have and the awareness they will bring to FSHD is truly remarkable.”

To get involved in this campaign, follow the FSH Society on Twitter, Facebook, Instagram and on their website and share the #CureFSHD images over social media.