Philly Cure HD, an organization dedicating to improving the lives of local families with Huntington's Disease, will take the next step in the fight against HD by hosting the second annual fundraiser and awareness walk at Norristown Farm Park, May 6 at 1 p.m.
In addition to the live music, food and fun of last year, we will host a very special guest, Nancy Wexler, Ph.D., and well respected Huntington's disease researcher. Nancy is President of the Hereditary Disease Foundation, founded by her father. Nancy played an important role in the discovery of the complex chromosome test which will tell patients if they will develop Huntington's disease. In addition to her role at the HDF, Nancy also is a member of Columbia University's Neurology and Psychiatry department.
Huntington's disease is a hereditary degenerative neurological disease that usually strikes people in their 30s and 40s; however, children are not immune. 1 in 20,000 people will get Huntington's disease; 15 million in the United States. At present there is no cure.
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Philly Cure HD was started in February of 2011 by a small group of people in the greater Philadelphia area. Our mission is to improve the lives of local patients and families of HD by providing counseling, future planning and referral for assistance, by fostering an HD community, by educating families and the greater community and by supporting HD research. In our first year, we have been able to make a generous donation of 30,000 dollars to the Hereditary Disease Foundation. Philly Cure HD has also employed the services of a full time HD Care Consultant to assist those individuals and families living with HD.
For more information on Philly Cure HD, Inc. and our walk, please contact Sandi Zubyk at 215.855.6686 or via email at szubyk@comcast.net.
