Local Woman Receives Special Honor From National Nonprofit

TOLLAND, CT (July 11, 2016) — For her efforts with the Cornelia de Lange Syndrome (CdLS) Foundation for over 20 years, Lynn Audette of Tolland, CT, was inducted as a member of the de Lange Society, which publicly recognizes individuals and volunteer groups, who, like Dr. Cornelia de Lange, lead the way for others.

Audette has been a CdLS Foundation staff member since 1996. Since joining the Foundation, Lynn and her family have actively volunteered at numerous Foundation events, including family gatherings, conferences and other awareness opportunities. She recently facilitated the creation of When Angels Take Flight, a publication created to help grieving families of individuals with CdLS, as well as other publications.

“I am so humbled to be part of such a caring, generous, passionate and hard-working group of individuals!” said Audette.

She has been integral in expanding services for families throughout the years, and her guidance has led to new programs and services for families. In her role as Family Service Coordinator, she has visited families in almost every state, welcoming them as they meet other families for the first time. Her dedication to her work far extends beyond her job, but is evident in the compassion she shows to families’ nationwide year after year.

To learn more about the CdLS Foundation, or to make a donation, visit www.CdLSusa.org, or call 800-753-2357.

About CdLS

Cornelia de Lange Syndrome occurs in about 1 in 10,000 births. An estimated 20,000 people in the U.S. have CdLS, but remain undiagnosed and/or without support services. Individuals with CdLS range from mildly to severely affected, though most have similar physical characteristics including small size, hands and feet; thin eyebrows that meet in the middle; long eyelashes; an upturned nose; and thin, downturned lips. Some individuals have limb differences, including missing fingers or arms. Common medical problems include GERD, bowel obstruction, hearing loss, and congenital heart defects. Early diagnosis and intervention are essential to ensure proper management of related medical issues.

About CdLS Foundation

Founded in 1981, the Cornelia de Lange Syndrome Foundation is a national family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS and their families make informed decisions throughout their lifetime.

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