This post was contributed by a community member. The views expressed here are the author's own.

Oakton|Local Event

Local Golf Tournament Driving Urgent Research for Children with Rare Disease

Local Golf Tournament Driving Urgent Research for Children with Rare Disease

Event Details

Westfields Golf Club, 13940 Balmoral Greens Ave, Clifton, VA, 20124

What started with two Northern Virginia girls is now driving a national effort to change what’s possible for children facing a rare, progressive neurological condition.

Join The Lilly and Blair Foundation for a high-impact day of golf at Westfields Golf Club — where every swing helps accelerate research and move closer to real treatment options for children with de novo spastic paraplegia (SPG4).

Since 2023, the foundation has raised nearly $1 million to fund research, build critical partnerships, and push urgently toward clinical progress.

This is more than a tournament — it’s momentum in motion.

Event Highlights:
• 18-hole tournament at Westfields Golf Club
• On-course contests, games, and prizes
• Food, drinks, and networking throughout the day
• Evening dinner, program, and live music
• Silent auction and additional ways to support

Golf. Sponsor. Join for dinner.
However you participate, you’re helping accelerate progress for children who don’t have time to wait.

Spots are limited.

Register now:
https://www.lillyandblair.org/golf

More Upcoming Events

Add an eventPost
Featured
Featured
Featured